no sale of signed tshirts in aimgiral this yearnor the year before elsewhereno kick off in front of the public in order to raise awareness of the cause of the fight against cystic fibrosisand yet this year online donations have skyrocketed to the point of being multiplied by twostphane mathieu president of mucovie 66 still cant come backmoved to see that the partners and donors faithful to the structure he set up now 18 years ago have not volatilized with confinementout of sight out of mind he feared it he admitswe had created a physical link with the supporters of mucovie 66 we met we exchanged we were getting news and i was afraid that all of this will disappear with the distance and i was touched to see the opposite the opposite it was for example crdit agricole which maintained its virtual solidarity march making it possible to donate 7000 euros to the fight against cystic fibrosisit is the auction of the signed jerseys of top 14 and pro d2 which was made online thanks to the ffr and provale the union of professional playersanother 4500 eurosplus the teddy bear operation at the mcdowe were enormously asked to create events in order to overcome the covid crisis said the presidentin the end the flawless mobilization made it possible to compensate for what could have been a brzinathanks to the new treatment some have been withdrawn from the waiting list for a transplant here is the catalan association able to offer the resource center against the cystic fibrosis of the arnauddevilleneuve hospital in montpellier the sum of3028680 eurosan envelope that will provide patients with remote sports supportboth in the form of physical activities by videoconferencing as well as by setting up a personalized program in connection with a coach of a gym close to the patients homea news that is timely appointed for many young people with cystic fibrosis finding a second breath thanks to a brand new treatment made in usa which arrives in france after a long associative mobilizationthe kaftrio from the green laboratory taken care of by the national health insurance fund since the beginning of the summer seems to keep its promisesstphane mathieu observes in his own son aged 20 years spectacular effectsin two months romain recovered 25 to 30 respiratory capacity he had not breathed like that for at least 10 years some have been removed from the waiting list for a transplant improvement on the digestive sideallowed romain to take 5 kg at the same time this is a huge step not to mention what new treatment also reduces medication he swallows 30 to 40 per day editors note i see him in hiseyes in his way of straightening up it is a future that we offer to these young people they will be able to project themselves it fills me with happiness his project founder of mucovie 66 is to soon lead to a medication that definitively heals symptoms but the