[{"text_idx": "#000002", "text": "Y WefanY Ti\u0302mGwybodaeth i Rieni"}, {"text_idx": "#000006", "text": "*Scroll down for English & comments*"}, {"text_idx": "#000007", "text": "Profiadau pobl ifanc sy'n dioddef yn dawel"}, {"text_idx": "#000008", "text": "The experiences of young people suffering in silence."}, {"text_idx": "#000010", "text": "Genre: iechyd a lles, hunan-help / health & wellbeing, self-help"}, {"text_idx": "#000012", "text": "Adolygiad gan Manon Elin James"}, {"text_idx": "#000013", "text": "Dyma gyfrol lle y mae dwsin o bobl ifanc rhwng 10 a 26 oed yn rhannu eu profiadau o fyw a\u0302 chyflyrau iechyd hir dymor, a hynny\u2019n gwbl agored ac yn onest."}, {"text_idx": "#000014", "text": "Rhoddir sylw i amrywiaeth eang o gyflyrau: iselder, gorbryder, cancr y gwaed, anhwylder gorfodaeth obsesiynol (OCD), spina bifida, clefyd y siwgr math 1, epilepsi, ulcerative colitis, clefyd stargardt, CFS/ME, acne a Myasthenia Gravis. Mae enwau rhai o\u2019r cyflyrau yn gyffredin, ond mae\u2019n bosib mai dyma\u2019r tro cyntaf i nifer ohonynt gael eu trafod yn gyhoeddus yn Gymraeg."}, {"text_idx": "#000015", "text": "Egyr y gyfrol a\u0302 rhagair gan y golygydd, Sioned Erin Hughes, sy\u2019n egluro mai nod y gyfrol yw rhoi \u201cllais i\u2019r sawl sydd wedi ofni eu geiriau eu hunain cyhyd, a hynny ar gownt y stigma\u201d, gan ddangos hefyd nad yw bywyd pobl ifanc yn fe\u0302l i gyd."}, {"text_idx": "#000016", "text": "Ceir rhestr hynod ddefnyddiol o beth y dylid, ac na ddylid, ei ddweud wrth rywun sy\u2019n byw a\u0302 salwch neu gyflwr hirdymor. Er enghraifft, gall rhywbeth mor syml a\u0302 gofyn \u2018Sut wyt ti\u2019n teimlo heddiw?\u2019 fod o gymorth mawr. Rwy\u2019n siw\u0302r y bydd rhestr o\u2019r fath yn annog sgyrsiau, gan fod pobl yn fwy hyderus eu bod yn gwybod beth i\u2019w ddweud."}, {"text_idx": "#000018", "text": "Mae\u2019r profiadau a rennir yn y gyfrol hefyd yn llwyddo i chwalu mythau am rai o\u2019r cyflyrau. Wrth feddwl am epilepsi, mae\u2019n siw\u0302r y bydd y rhan fwyaf ohonom yn meddwl yn syth am ffitiau. Ond mae darn Liwsi Mo\u0302 yn ein haddysgu am fath penodol o epilepsi, sef Atypical Absence Epilepsy. Yn yr un modd, mae Elis Derby yn chwalu\u2019r stereoteip niweidiol mai gair i ddisgrifio person taclus neu drefnus yw OCD drwy ddisgrifio\u2019r \u2018meddyliau drwg\u2019 a ga\u0302i: \u201cdarluniau o weld aelodau o fy nheulu yn cael eu hanafu\u2019n ddifrifol mewn damwain car.\u201d"}, {"text_idx": "#000019", "text": "Yr hyn sy\u2019n gwneud y gyfrol yn arbennig yw\u2019r modd y plethir cyflyrau corfforol a meddyliol. Wedi\u2019r cyfan, mae\u2019n anodd meddwl am unrhyw salwch neu gyflwr na fyddai\u2019n cael effaith negyddol ar sut mae rhywun yn teimlo. Sonia Lois Mererid Williams am yr unigrwydd a deimla \u201cfod \u2019na neb arall yn dallt \u2018go iawn\u2019\u201d. Cofnoda Sioned Erin Hughes hefyd fod sgileffaith cyffuriau i drin Myasthenia Gravis yn medru cynnwys mathau o iselder, gorbryder, hysteria a pharanoia."}, {"text_idx": "#000020", "text": "Drwy rannu eu profiadau personol mor agored ac onest, cawn ein haddysgu am realiti byw a\u0302 chyflyrau hirdymor o ddydd i ddydd. Cawn ddarlun gonest a real o\u2019r cyflyrau, a hynny heb fod yn orddramatig. Er bod y cyfraniadau yn bwerus ac yn ddirdynnol ar adegau, mae gobaith yn amlwg ym mhob un ohonynt."}, {"text_idx": "#000021", "text": "Mae\u2019r gyfrol yn rhoi llais i\u2019r cyfranwyr i rannu eu profiadau, a thrwy hynny addysgu\u2019r darllenwyr am gyflyrau y mae nifer ohonynt yn ddieithr. Mi wnes i yn sicr ddysgu llawer am gyflyrau a dysgu rhywbeth gan bob un o\u2019r cyfranwyr. Rwy\u2019n siw\u0302r bod darllenwyr sydd a\u0302 phrofiad o\u2019r cyflyrau hefyd yn cael budd a chysur o fedru uniaethu a\u0302\u2019r profiadau a rennir."}, {"text_idx": "#000022", "text": "Er mai cyfraniadau gan bobl ifanc a geir yma, mi fyddwn i\u2019n annog pawb i\u2019w ddarllen, gan fod y cyflyrau iechyd a drafodir yn medru effeithio ar unrhyw un o unrhyw oed."}, {"text_idx": "#000025", "text": "Review by Manon Elin James"}, {"text_idx": "#000026", "text": "This is a volume in which a dozen young people between the ages of 10 and 26 share their experiences of living with long-term health conditions, quite openly and honestly."}, {"text_idx": "#000027", "text": "A wide range of conditions are covered: depression, anxiety, blood cancer, obsessive compulsive disorder (OCD), Spina bifida, type 1 diabetes, epilepsy, ulcerative colitis, Stargardt disease, CFS/ME, acne and myasthenia gravis. Some of the conditions are common, but this may be the first time that a number of them have been discussed in public in Welsh."}, {"text_idx": "#000028", "text": "The volume is opened by a preface by the editor, Sioned Erin Hughes, who explains that the volume aims to give \"a voice to those who have feared their own words for so long, and experienced stigma\", and also shows that young people's lives are not all rosy."}, {"text_idx": "#000029", "text": "There is an extremely useful list of what should and should not be said to someone living with a long-term illness or condition. For example, something as simple as asking ' how do you feel today? ' can be very helpful. I am sure that such a list will encourage conversations, as people are more confident that they know what to say."}, {"text_idx": "#000030", "text": "Each chapter has a different structure and format, with some contributors sharing how the illness has affected them as they grow up, while others decide to focus on a set period. For example, a record of a day with OCD that we get from Elis Derby, which shows that the symptoms and impact of such conditions vary on a daily basis. This is also emphasised by Mared Jarman, who says that her eyesight is not consistent: \"It changes from day to day, from hour to hour, from room to room, and from person to person.\""}, {"text_idx": "#000031", "text": "The shared experiences in the volume also succeed in dispelling myths about some of the conditions. When I think of epilepsy, most of us will probably think immediately about fits. But Mo\u0302 's colourful piece teaches us about a particular type of epilepsy, Atypical Absence epilepsy. Similarly, Elis Derby breaks down the pernicious stereotype that OCD is a word to describe a tidy or organised person by describing the 'bad thoughts' that they would get: \"Pictures of seeing members of my family being seriously injured in a car crash.\""}, {"text_idx": "#000032", "text": "What makes the volume special is the way in which physical and mental conditions are interwoven. After all, it is difficult to think of any illness or condition that would not have a negative impact on how one feels. Lois Mererid Williams talks about the loneliness she feels \"that no one else really understands.\" Sioned Erin Hughes also records that the side effects of drugs to treat myasthenia gravis can include types of depression, anxiety, hysteria and paranoia."}, {"text_idx": "#000033", "text": "By sharing their personal experiences so openly and honestly, we are taught about the realities of living with long-term day-to-day conditions. We have an honest and real picture of the conditions, and that is not overly-dramatic. While the contributions are sometimes powerful and upsetting, hope is evident in all of them."}, {"text_idx": "#000034", "text": "The volume gives contributors a voice to share their experiences, thereby educating the readers about conditions many of which are unfamiliar to us. I certainly learned a lot about conditions and learned something from each of the contributors. I am sure that readers who have experience of the conditions also benefit and are able to relate to the shared experiences."}, {"text_idx": "#000035", "text": "Although there are contributions from young people here, I would encourage everyone to read it, because the health conditions that are discussed can affect anyone of any age."}, {"text_idx": "#000036", "text": "A review from , with the permission of the Books Council of Wales."}]