hat
Nan kòmansman 2019, ISTH òganize yon gwoup ekspè mondyal ki soti nan kominote emofil mondyal la pou devlope yon sondaj pou idantifye bezwen edikatif ki pa espesifik pou terapi jèn nan emofili. Sondaj la te distribiye sou entènèt nan yon odyans entènasyonal. Rezilta yo demontre ke anpil bezwen plis edikasyon sou fondamantal terapi jèn ak yon pi bon konpreyansyon de terapi jèn kòm yon apwòch tretman pou emofili A ak B.
eng
In early 2019, ISTH organized a group of world-renowned experts from the global hemophilia community to develop a survey to identify unmet educational needs specific to gene therapy in hemophilia. The survey was distributed online to an international audience. The results demonstrated that many need more education on the fundamentals of gene therapy and a better understanding of gene therapy as a treatment approach for hemophilia A and B.