Snippet - Health and Medical Short Bites #2 - Storing and publishing-med.data.edu.au
Christiansen, Jeff
Short snippet outlining what Jeff Christiansen (QCIF) talks about more extensively in the 16 May 2017 webinar: Storing and publishing heath and medical data.
 We're talking about data sharing infrastructure for health and medical research data and the use of any human derived research data carries some legal and ethical responsibilities ensuring that this information is not disclosed to non-authorized individuals and that could be either intentionally by hacking or inadvertently by people accidentally providing access to someone and perhaps not provoking that. So researchers when undertaking this have a responsibility to keep this information safe but also do data custodians of particular data sets as well as data infrastructure providers. So metodata.edu.au or metodata for short is a nationally funded cloud based data storage system. We like to think of it as a secure container that's also linked to high performance compute resources for health and medical data. It's available for use by any Australian researchers. Our primary focus is on probably large data sets so this is 1 terabyte and larger or going to grow to that amount. Currently we have six petabytes of data stored that's equivalent to about 8 million CDs and that's primarily de-identified prior to storage. However, de-identified data can also be stored on metodata.edu.au and if that's the case we'd love to hear from you to discuss the use requirements of such data which does affect the storage customization. So that's how is the data intended to be used, when and where and by who. We had some contact details on our website and we would love to hear from you.
 We're talking about data sharing infrastructure for health and medical research data and the  use of any human derived research data carries some legal and ethical responsibilities ensuring  that this information is not disclosed to non-authorized individuals and that could  be either intentionally by hacking or inadvertently by people accidentally providing access to  someone and perhaps not provoking that.  So researchers when undertaking this have a responsibility to keep this information  safe but also do data custodians of particular data sets as well as data infrastructure providers.  So metodata.edu.au or metodata for short is a nationally funded cloud based data storage  system.  We like to think of it as a secure container that's also linked to high performance compute  resources for health and medical data.  It's available for use by any Australian researchers.  Our primary focus is on probably large data sets so this is 1 terabyte and larger or going  to grow to that amount.  Currently we have six petabytes of data stored that's equivalent to about 8 million CDs  and that's primarily de-identified prior to storage.  However, de-identified data can also be stored on metodata.edu.au and if that's the case  we'd love to hear from you to discuss the use requirements of such data which does  affect the storage customization.  So that's how is the data intended to be used, when and where and by who.  We had some contact details on our website and we would love to hear from you.
Storing_and_publishing-med_data_edu_au_-_Jeff_Christiansen_-_Snippet_PV_vuUKRm6w_0_2588.png
We're talking about data sharing infrastructure for health and medical research data and the use of any human derived research data carries some legal and ethical responsibilities ensuring that this information is not disclosed to non-authorized individuals and that could be either intentionally by hacking or inadvertently by people accidentally providing access to someone and perhaps not provoking that. So researchers when undertaking this have a responsibility to keep this information safe but also do data custodians of particular data sets as well as data infrastructure providers. So metodata.edu.au or metodata for short is a nationally funded cloud based data storage system. We like to think of it as a secure container that's also linked to high performance compute resources for health and medical data. It's available for use by any Australian researchers. Our primary focus is on probably large data sets so this is 1 terabyte and larger or going to grow to that amount. Currently we have six petabytes of data stored that's equivalent to about 8 million CDs and that's primarily de-identified prior to storage. However, de-identified data can also be stored on metodata.edu.au and if that's the case we'd love to hear from you to discuss the use requirements of such data which does affect the storage customization. So that's how is the data intended to be used, when and where and by who. We had some contact details on our website and we would love to hear from you.
We're talking about data sharing infrastructure for health and medical research data and the use compute resources for health and medical data.