My daughter in India had pancreatitis ( no apparent reason ) 3 years back when 10, after 2 years also found that she has high CPK above 6000. High SGOT and SGPT ( 300 + ). All autoimmune tests okay, Muscle biopsy ( non electron microscope non conclusive ) , feels pain in legs mainly. faces stress, also falls frequently. Otherwise very active since birth and academically brilliant and good memory. What to do ?
HelloI may suggest a thorough work up at any of countries PGI or AIMS by a neurologist and gastroenterologist.it seems some liver dysfunction and skeletal muscle disorder are co-existing. Treating doctors often prescribe cortisone, but a clearer diagnosis and cause has to be verified first. I may suggest getting her physical therapy, exercises and methycobalamin tabs daily in meantime thanks