My son is now 5 years old and was born with Lymphangioma in his groin. He has had surgery, Bleomycin injections and other medications, but nothing is helping. He has now lost the ability to urinate and the urologist here in South-Africa put in a permanent catheter on Tuesday. Please find attached his test results that was done 18 months ago. I was wondering if there is any way in which you could help? The doctors here say that the Lymphangioma will infect all his organs one by one. Please let me know if there is anything that you could do to help us? Or if you know of someone else that we could contact in this regard? Charlene Moutinho (+0000)
There is no cure other than surgical intervention for which. And child should be by pediatrician for disorder which are associated with lymphangiomas.