hi, our 3 month old son has been diagnosed wit Carolis syndrome,my partners dad passed away from liver problems and we know that it is genetic,my partner is been checked for the same thing but we want to know if our son is going to suffer the same path as my partners dad?
Hi I can understand your concern... Yes, Carol disease is genetic disease. It may be simple dilatation of bile duct, or it is associated with hypertension and fibrosis known as Carol syn Chat Doctor. .... Let me know you condition is dangerous .you can consult surgeon for treatment.... Ursodiol can be used. If limited to one lobe then lobectomy might be done. Liver transplantation is also another option... Patient usually die by complications like repeated cholangitis.... Death usually within 5 to 7 year according to various literature... Take care...