I am 60 years old, 5 3 , 135 lbs and have been diagnosed with Intracranial Hypotension. I have seen 3 different neurologists, had 4 MRIs, and am currently taking fludrocortisone (.1/day). After the latest MRI (looking for a leak), my doctor said he found no evidence of any, and had no further advice. I want to know how I can find a doctor with experience in the condition that I would be able to get an appt. with; doesn t matter what city.
Hello! Welcome and thank you for asking on Chat Doctor! I passed carefully through your question and would explain that besides the clinical symptomatology (headache triggered by sitting or standing up), intracranial hypotension is associated to specific changes in the brain and spine MRI studies. So, if your brain and spine MRI study are normal, we can exclude this possibility. Besides, this disorder is not usually treated with flu Chat Doctor.  The main treatments are prolonged bed rest or epidural blood patch. Another disorder, which may mimic this clinical scenario, is orthostatic hypotension, which is usually treated with fludocortisone. For this reason, I recommend performing a Head Up Tilt test to investigate for this disorder. You should discuss with your doctor on the above tests. Hope you will find this answer helpful! Kind regards,