Hi I m Mary and I too have this LEukocytoclastic Vasculitis, diagnosed in June 2007 with biopsy and? ... also told I had Hep c. I was diagnosed with stage 4 non Hodgkin s malt lymphoma in November 2008 after an endoscopy with biopsy. I went through treatment with 8, 4 hour Rituximab infusions 1 per week. This treatment cleared up everything. The lymphoma came back in late 2011 and after the same amount of treatments I m again in remission. My biggest problem now is this vasculitis is now on my kidney. I had a kidney biopsy in 2011 and it is this LCV. After treatment for lymphoma my kidneys got better but now it s been back since 6/2013. My kidneys bleed as they did in 2011 which caused me to get 3 units of blood to replace the blood lost in my kidneys. Right now my kidneys still bleed and hurt , it s also on my gastrointestinal track. My blood pressure is once again out of control as it was in 2011 and half of 2012. I had a mini stroke and was in ICUS in 4/2012. My immune system is in terrible shape and I m struggling to try to keep this all in control and find a cure. I ve found several years ago that my vasculitis flares up worse when I do any type of activity. I was a very active hard working Licensed Electrician for over 20 years before my diagnosis. I have never been anywhere close to lazy but I must start being extremely lazy if I plan to stop this spread to other organs. I was also diagnosed with a brain tumor in 1/2010 it was an inch and now is a little over 2 inches, it s ok for now but due to all my health issues were just monitoring it. I hope to learn something from you all and possibly you can learn from my experience with this disease. Stress of any kind makes this LCV worse. Walking, deep cleaning, activity, too hot, too cold, etc.! Thanks for the support what magic do you have for my condition? Thanks
After hearing your history I would advise you to take TRANEXAMIC ACID tablet 500 mg twice daily for 5 days. I would also advise you to do a CT scan of whole abdomen. Regards Chat Doctor.