Hi, I am a 31 yo female and have had kidney/urinary issues since a very small child, starting with my first kidney infection at 9 months old. During childhood, I had recurrent UTI s and had both and urologist and nephrologist that did every test imaginable, without any answers. They ended up keeping me on antibiotics for a hear and a half continuously and that seemed to fix the problem for a long time. Starting in early adulthood I started having chronic hematuria usually accompanied with protien with occasional UTI s. They wanted to repeat all the tests and did with still no answers. I have continued having microscopic hematuria for about the last ten years but otherwise unsymptomatic. However, the past three months has been another story. I thought I have had several serious UTI s but go and urinalysis and culture reveal it s not but there is the highest amount of gross hematuria there can be. They do an in and out catheter each time thinking I m on my period but it is same with catherization. There is low back pain and dull abdominal pain with pulsating urinary pain (which is currently the cause for me to be awake at 3 am), increase in frequency (particularly at night). Also a few nights ago I fell asleep hurting and woke up urinating on myself (not leaking but full urinating). I have gone to urologist and he said perhaps to do another cystiscope and for me to continue to take peridian. I have never encouraged any testing, every time before has been at the doctor s prompt demand but I feel like maybe it is time to run all the tests again? By the way, I have had ultrasounds, ct scans, cystiscope, ivp dyes, etc. in basically two waves, once when young and once a few years after chronic hematuria and protein. What tests would you recommend? Any insight? Also, should I be following up with urologist or nephrologist? I haven t seen the nephrologist since I was 13. Thanks.
Hi with this chronic urinary tract infection & hematuria, you have to regularly visit the urologist or nephrologist, so that you may not land up in urosepsis, or HY Chat Doctor.  Regular urine routine & culture sensitivity tests added with renal function tests, uric acid, phosphorous levels, mammogram are recommended in your case. All the best take care