spontaneous cerebral spinal fluid leak began about 2 years ago. 3 blood patches failed. 3 spinal surgeries (05/13, 07/13, 08/13) to patch the leak all failed. Final fourth surgery in 08/13 for 17.5 hours, hardware now in back from C4-T6. Slow healing process but no recurring symptoms until 2 weeks ago. New symptoms include blurry vision, positional headaches that alleviate when lying flat, nausea, pain in the eyes and back of the head. An ICP bolt was placed in the patient s skull to monitor pressure. Lying flat ranges from +4 to +12. Sitting up drops to -6. Standing up drops to -9. Neurosurgeons have concluded cranial hypotension, but there is no sign of a CSF leak on the imaging. Doctors are at a stand-still and don t know where to turn from here. We need help.
Hello. I have been through your question and understand your concern. It seems clear to me that it is an orthostatic intracranial hypotension. You just have not found the leakage site yet. I recommend proceeding with a geography which can help more than CT and MRI to find the leakage site. Talk to your neurosurgeons about this. Hope this helps. Please feel free using MHC again