My main question is were do I go next. I have multiple medical issues. My health has gone down to the point where I lost my job and have filed for disability by advice from my primary doctor. On a general question asked before the doctor responded my issues may be mental related, IE all in my head. Somatoform disorder is what he said. But first let me explain every issue I had been diagnosed with I saw specialists and everything was confirmed on tests. I do have active ulcerative colitis via 17 biopsies. I do have active psoriatic arthritis although my form effects more of my major joints than fingers and toes. I do have arthritis and degenerative disks disease in my spine. My arthritis in my spine is worse in my neck. All my life since being a child I have experienced myoclonic jerks. They can come in clusters in the day but mainly happen when I try to sleep. As a child I had my fair share of head injuries. One requiring blood removal from my skull at age 10. I have experienced blank out spells as a child that got me into a lot of trouble at school and at home. My primary doctor back then did not do any tests or send me to see a specialist. Instead I was put on ADHD drugs. I have noticed multiple times what some call auras. I can be watching TV when suddenly everything in the room looks far away and suddenly all sound goes silent. 5 years ago my GI doctor was trying to figure out why my colitis was not responding to medications other than steroids. An endoscopy found a tumor and multiple tests and CT scans later a trauma surgeon took my case and did the surgery. After the surgery my colitis started getting better but my arthritis exploded. I was diagnosed with spondylosis in my neck with multiple collapsed disks. C1 threw C3 are the worst. I began having stronger myoclonic type attacks in the evening before bed and in the morning. My mother would even tell me I was jerking and blanking out during the day for which I had no memory. Also a few back I started having double beart pause heart beats. Sometimes instead of returning to normal beats i would go into tack for a short period. Then suddenly I started getting these slow motion attacks as I tried to sleep a few weeks ago. They would start with an uplifting feeling in my gut that would spread into my chest. All sound would go away as I felt a slow motion electrical type shock hit me that seemed to take minutes rather than seconds. Then suddenly it was over and my heart would be pounding and I would be sweating. The only emotional feeling was scared that it happened wonder what just happened. These attacks happened back to back as the night went along. I ended up not sleeping for 3 nights straight. I contacted my primary and he put me on klonopin 1mg at bedtime and asked me to see a neurologist. The neurologist asked me to see a psychiatrist to rule out panic attacks. Panic attacks were ruled out so i went back to the neurologist. Instead of asking me questions I was chewed out for letting my doctor put me on klonopin or even suggesting I might need an EEG study. I was sent to a sleep study clinic which ruled out sleep apnea and sent me back for an EEG study. My neurologist then gave in and did a 2 hr sleep deprived study which showed nothing despite being told by the tech I had 2 myoclonic type jerks and asked me why I never hit the panic button so they could be identified better. So my neurologist basically pushed me out the door at that point and doesn t want to see me for another year. what bugs me most is that i worked in orthopedics years ago and know that RA in the neck can effect the brain. I also have a family history of ALS and picks disease. What should I do now. Should I seek out a second opinion? If so should this opinion be from another neurologist or a different field like a spine doctor?
Go for another opinion by neurosurgeon n go to physiotherapist for Ursa factor n he mild mulligan traction n strengthening execs. As well as do move. Of cervical in every 1 hr.