My daughter was diagnosed with a rare metabolic disorder through a newborn screening called MCAD. She is missing an enzyme which helps metabolize fats. Her body utilizes glucose as its main source of energy. She cant fast for long periods of time and if she is unable to eat for an extended amount of time due to illness she is hospitalized and given an IV of D10. I am wondering what the long term prognosis is for her. She takes a daily supplement to help breakdown fat and waste in her body something that normal peoples bodys do naturally.  Im wondering if she will have any long term liver issues or what her life will be like as she is older?
HIT hank for asking to ChatDoctorYour daughter may have some genetic kind of disorders long term medical management may require in such cases the prognosis is almost depending upon the future medical management, if every thing goes uneventful then patient can reach up to normal expectancy of life, but the chances of this is very minimal to have nice day.