My husband was diagnosed with wegeners disease 18 mos. ago. His blood work is good but he has no appetite, is fatigued, is losing weight, and is cold most of the time. He had an ERCP which showed his stomach, liver, and pancreas to be normal. What could be causing these symptoms?
Hello. I presume that all investigations have been done for the patient. Fatigue and the other symptoms are all a part of Wegener. It is important to get a blood Urea and serum creatinine test done to find out the functioning of the kidneys since kidney problems may manifest as fatigue. Anemia or low hemoglobin is also a cause of fatigue. I presume complete blood count has been done. ESR is a test to measure disease activity. Fatigue also may be the side effect of medications which have to be followed up. I suggest that you may get a blood Urea, serum creatinine, ESR, urinalysis, complete blood count and ESR. You may also use folic acid and vitamin B supplements to help with the fatigue. Please post your investigations and further queries here so that I may assist you with more information. Wegener requires good suppressive and maintenance treatment and usually responds well. Take care