Hi, I am 44 years old, and had a very large angiomyolipoma removed when I was 29 after it ruptured and I was bleeding internally. Would like to know what my chances of having Tuberous Sclerosis are and what kind of tests can be done to confirm or rule out TS ? Thanks, Sam Allen
Hello, Angiolipomas may occur in kidney or other organs in TS. But it may won't shrink its own need to surgical excision. There may recurrence chances also high at other site.Don't worry, please follow up with your treating doctor he will examine and treat you accordingly. Take care. Hope I have answered your question. Let me know if I can assist you further.