I have been diagnosed with paget s disease and am having a lot of pain in my left hip and leg. I have been prescribed alendronate sodium which helps as the day goes on, but the mornings are very painful. This all started about 9 months ago even though I was diagnosed in 1996 after prostate surgery. I would like to know what I have to look forward to ( prognosis I guess) and if there is anything I can do for the pain. Thanks, Nick Farris
Thanks for your question Nick. To answer the first part of your question outlook for people diagnosed with Pages disease is generally good, particularly if treatment is given before major changes have occurred in the affected bones. Life expectancy is not altered and the chances of developing estrogenic sarcoma is less than 1 %. Also note that disease does not spread to normal bones answer your second questionable pain can require anti-inflammatory Chat Doctor.  Prior to undergoing surgery on bone affected by Pages disease, it is helpful for doctors to treat patients with medications, such as bisphosphonates or calcitonin (Miscalling), as this tends to diminish the risk of surgical complications, including bleedingBisphosphonates are the mainstay of treatment for Pages disease of booklet me tell you Nick that I cannot inform the dosage over the Internet as tests have to be run specially your Liver profile to decide the dosage.Therefore, I suggest you talk to your treating physician about the dosage of bisphosphonates and calcitonin can however suggest Ibuprofen 800 mg twice a day for your pain hope this helped. Take care