[company_age]12.0[/company_age][employees]1-10 employees[/employees][funding]grant[/funding][description]The ALD Alliance is a non-profit organization dedicated to curing, supporting, and advocating for individuals with adrenoleukodystrophy (ALD), a rare genetic disorder affecting the nervous system. Founded in Brooklyn, New York, the organization was formerly known as the Aidan Jack Seeger Foundation. The ALD Alliance stands out for its comprehensive approach to tackling ALD, encompassing advocacy, support, and research. 

In the realm of advocacy, the ALD Alliance champions nationwide newborn screening for ALD, ensuring early detection and intervention. They actively engage with policymakers and medical professionals to advance this cause. Additionally, the organization provides unwavering support to families impacted by ALD, offering resources, psychological assistance, and physician support. This holistic approach sets the ALD Alliance apart from other organizations in the rare disease space.

The ALD Alliance's research endeavors are equally noteworthy. They actively fund research initiatives aimed at identifying novel treatments and ultimately a cure for ALD. Their commitment to research fuels hope for a brighter future for individuals living with ALD. The organization's dedication to advocacy, support, and research makes it a beacon of hope for the ALD community.[/description][ps]The ALD Alliance provides a range of services, including advocacy for newborn screening, family support, psychological support, physician support, legislative support, and resources in Spanish. The organization also hosts events and initiatives related to newborn screening education, outreach projects, and legislative action.[/ps]