was diagnosed with Spinal Meningitis . Hours and days crept by , waiting every four hours for our ICU visit , 10 minutes of torture . `` Your daughter is very sick . Her mind is surely in a vegetated state from the seizures she continues to have . The stroke that she suffered has caused the left side of her body to be paralyzed , '' the doctors said . See photos of Mandy throughout her ordeal '' `` She is in a coma and we see no way she will wake up . We really do n't think she will live through the night . It 's time to tell her goodbye , '' they continued . Mind spinning , stomach churning , feeling like I 've had the breath knocked out of me , I whispered , `` NO . '' `` No . We wo n't tell her goodbye . And you ca n't either . She has to fight . She has to know that we want her to fight . '' At 13 months , her left eye turned red . Allergies , Pink Eye , minor infection ? All easily treated , and
CONYERS , Georgia -LRB- CNN -RRB- -- `` Your daughter is a walking time bomb . '' We have been told this more times than I like to remember . We have lived every day not knowing if the next breath she takes will be her last . After 22 years in the dark , Mandy Young is grateful to finally have a name for her condition . Her illnesses come so quickly . It 's a daily battle of fear , worry , misery , faith and hope . She has been in the hospital more than 100 times . She has suffered one life-threatening infection after another . We share her story , our story , in hopes of helping others . We make sure that Mandy knows this is not just her illness . It 's our families ' life , our journey . She is not in this alone . It 's extremely hard living a life so mysterious that doctors and scientists named her rare disease after her . It 's our story about `` Mandy 's Disease . '' Mandy was a healthy , nine pound , green-eyed beauty -- until the day she