summary jessica claire 100 montgomery st 10th floor 555 4321000 resumesampleexamplecom patient advocacy expert experience liaising pharma biotech companies patient advocate expert patient advisor global experience built relationships two decades serving rare disease community lead empathy understand voice patients caregivers skills business planning development fundraising marketingbranding sales communication strategy experience expert patient advisorlead patient advocate 2008 present maria hadjidemetriou consultant city state relationship building public speaking social media expertise divergent thinking research latest drug development consulting pharma biotech companies expert patient advisor clinical trials patient centric well input marketing branding provide insight feedback clinical trial design educational support partnered brand leadership influence patient marketing campaigns assisting biopharma firms putting together patient advisory council capture patient voice concerns beta thalassemia meet executives biopharma latest innovations nid new investigative drugs explain thalassemia patient journey current treatments secondary diseases side effects staying current new therapies currently clinical trials wrote essay eurordis keep smiling featured website rare disease day 2021 published two articles peertopeer medical journal american journal hematology 2017 2019 wrote produced short documentary winning two film festival awards thalassemia life without boundaries featured rare disease channel documentary also translated arabic farsi russian developed agenda thalassemia conferences focus topics captures patients voice concerns invited maldives ministry health thalassemia society maldives meet health officials doctors nurses best practices maintaining optimal health thalassemia executive board member 2005 present cooleys anemia foundation city state identified philanthropists greek community developed optimized marketing engage interest individuals annual donations established goals soliciting funds ie dinner galas beer tasting walkathons creative events established maintained positive relationships government regulators pharma executives patients family members area health care providers physicians community large delivered speeches annual familypatient medical conference forms sole presenter chairperson panelist moderator sourced speakers annual patientfamily medical conference managed booth exhibits annual american society hematology ash conference meet biopharma executives presented us food drug administration fda treatment approved 42 countries yet approved usa continued present fda 2011 treatment finally approved expert patient advisor 2013 present thalassemia international federation city state created manage official tif instagram account composing content engage followers comments grow number followers monitor activities research health trends thalassemia delivered speeches groups people various healthcare summits medical conferences addressing thalassemia new novel therapies patient partnership patient rights gene therapy motivational living healthy eating exercising creating outstanding lifestyle attended participated industry events overseeing exhibit booth speaking hematologist biopharma executives invited world health organization speak geneva 72nd world health alliance gene therapy united nations patients rights invited speak 2013 world congress thalassemia meeting abu dhabi presentation keeping positive mind thalassemia presented 2017 amman jordan holding multiple workshops young professionals mothersmotherstobe invited ministries health patient organizations kuwait oman delegation visit addressing patients needs current treatments giving best practices maintaining optimal health hematologists cardiologists nurses blood bank executives ministries education training bachelor science marketing 061994 fashion institute technology new york ny international marketing 081993 instituto lorenzo de medici florence italy certificate life sciencegenetics 022021 eurordis academy paris france intense courses history genetic disease eu laws rare diseases certificate thalassemia 102020 thalassemia international federation nicosia cyprus intense studies history thalassemia gene therapy patient advocacy