An Analysis of Factors Influencing Dementia Study Enrollment: Focus Groups with Diverse Community Members Viewing the ACTNOW Research Registry Website

Many barriers discourage individuals from enrolling in dementia research studies, such as lack of information, web accessibility, and transportation. Research stakeholder feedback is necessary to understand these barriers. We used virtual focus groups to learn how to improve the website of our local research registry: ACTNOW (Alzheimer’s Comprehensive Treatment Network of Oregon and Washington). Local community members from diverse backgrounds interacted with the study team to provide insight on some of the roadblocks to research participation. Here, we report on findings from the focus groups and participants’ feedback related to the ACTNOW website and user engagement.