How Researchers Can Build Research‐Strengthening Partnerships Through Centering the Lived Experiences of Self‐Identified Members of African American/Black Communities

Persons who self‐identify as Black or African American comprise more than 14% of the population in the United States of America, with Black persons populating the entire globe. Notably, heterogeneity and within‐group diversity exist, especially due to geographic location, migration, and immigration. However, researchers continue to conduct studies that do not adequately represent this critical group of individuals with a higher risk of Alzheimer’s disease and related dementias (ADRD) coupled with salient experiences of negative structural and social determinants of health. ADRD research requires diverse participant perspectives to ensure that research findings – from educational materials to lifestyle interventions and pharmacologic discoveries are safe and relevant to all of us. This presentation will feature a panelist with both lived dementia experience and who identifies as African American/Black. The panelist will provide their perspectives and input to identify and address barriers, and amplify facilitators of ADRD research participation.