International collaboration and the FTD Prevention Initiative

The Frontotemporal dementia Prevention Initiative (FPI) is a collaborative group made up of familial FTD (fFTD) research groups across the world. This includes the Genetic FTD Initiative (GENFI) in Europe and Canada, ARTFL‐LEFFTDS Longitudinal Frontotemporal Lobar Degeneration (ALLFTD) in the USA, the Multi‐partner consortium to expand dementia research in Latin America (ReDLat), the Dominantly Inherited Non‐Alzheimer’s Dementias (DINAD) in Australia, and The New Zealand Genetic FTD Study (FTDGeNZ). Initial efforts have been focused on individuals from families who are known to carry mutations in the C9orf72, GRN and MAPT genes.