The social information needs of people with albinism (PWA): A case study of Khomas region, Namibia

This paper focuses on the social information needs of people with albinism (PWA) in Khomas region, Namibia, and the sources of information used PWA to meet their information needs. The study applies Moore's model of social information needs and Wilson's model of information behaviour to investigate and understand the information needs and sources used by PWA to find information. The study was carried out using a qualitative case design within interpretivism paradigm and semi-structured face-to-face interviews were used to collect data from participants. Sixteen participants took part in the study, eight were males, and eight were female participants. Among these participants, two were children with albinism. The following information was identified as being crucial to PWA namely: skin- and eye-related information, information on what is albinism and its causes, disability grants, educational information, and emotional and psychological support. Additionally, the study established that PWA use formal, informal, and human sources of information to find information.