African Americans' intentions to share their Alzheimer’s preclinical biomarker results with loved ones in a hypothetical vignette: the importance of support persons

Literature on factors influencing the decision to enroll in Alzheimer’s biomarker research increasingly indicates that study partners are important to this decision. Limited research suggests participants are comfortable sharing their biomarker results within close relationships in the context of clinical trials. It is unknown how participants feel about sharing results in non‐clinical trial studies, which may be similar to future clinical settings in which risk information may be shared without an available clinical trial. Our objective was to understand whether and why prospective participants in preclinical AD biomarker studies intend to share their results. Because most preclinical biomarker research lacks adequate representation of African American and other racially and ethnically minoritized individuals, we focus our analysis on African Americans.