FTD Disorders Registry (FTDDR) Research Readiness Survey: Assessing awareness and attitudes towards participation in research

FTDDR is a web‐based, contact and research registry to amplify the patient/family voice and facilitate research for frontotemporal degeneration (FTD), a rare group of early‐onset dementia disorders. FTD not only alters cognition but also impacts behavior, personality, language, and movement. No treatments or cures are currently available, underscoring the need for research participation.