I am a 24 y.o. male who was previously healthy until Jan 2021 when I started to have a constellation of symptoms that started a few months after food poisoning in August 2020. I have an undiagnosed condition which initially presented with a feeling of excitability that I was in a constant fight/flight state (still am) and wasn't able to calm down. I then started having a few weeks later, unexplained bloating and diarrhea after meals which got worse over time. I had an extensive GI work up and about 5 days after colonoscopy, on May 10, I developed neurological symptoms. I had lightheadedness, dizziness that is not like vertigo. No spinning, but feels like I am on a boat crashing over waves and feel off balance even while sitting and laying down. Standing still is the worst. Walking can feel like I am stepping on something soft which alarms me into thinking I am losing my balance. I have balance and walking difficulty. In June 2021, I developed pain on my left temporal area that was sharp and lasted 3 seconds and then progressed to pain all over my head and described as burning in sensation. CT scan was negative. I was placed on methylprednisolone and valacyclovir and my symptoms improved while on steroids but have come back since being off of them. 
I then had spikes of high blood pressures, high resting heart rate and can feel delirious after eating. I am very hungry and my symptoms are not abated if I don’t eat. I have tremors/twitching in my legs, and sometimes noticeable tremors in my right hand. I was diagnosed with iron deficiency and I took iron supplements to help this. I have frequent bloating and diarrhea, stools are now orange, fatty, and oily. I have chest pain that is bilateral but mostly right and moves up to the shoulders and feels like an ache. I have dry mouth and constantly have a bad “morning breath” type taste in my mouth. I am frequently thirsty.  I urinate 6-7 times a night most nights. I have weight loss of 20 lbs. I don’t have muscle weakness but do feel exhausted. 
Sometimes I will experience symptoms of elevated BP, 150/90s, and then it will come down rapidly afterwards and I will feel more calm. 
 
 
I was diagnosed with SIBO and treated for this with Rifaximin and Neomycin. My GI symptoms worsened. I was recently diagnosed with C diff and am currently on oral vancomycin. My diarrhea has been improved somewhat in the last two days, but still have lots of undigested food and light colored stool. I have low libido, depression and lack of motivation. I am losing hope somewhat and found I can cry really easily. I don’t have as much racing heart or elevated BP as previously but it still occurs occasionally after eating when I have a gnawing pit in my stomach. 2 days ago, I was having one of my best days in months, and I was in the car with my parents talking and I felt like my brain shut off mid-sentence. I couldn’t think at all and I felt an extreme sense of “emptiness” in my head and neck. I felt like I forgot how to breath and needed to gasp for air, very scary and lasted about 2-5 minutes. No heartrate increase of chest tightness. I was not anxious during this time and it gripped me by surprise as I was having an unusually uneventful day. I had numbness and lack of proprioception on my head and neck. I didn't have any pain though. Yesterday, my head pain returned to levels Ive had from weeks ago. I currently weigh 190 lbs and am currently stable. I am not able to increase my weight. 

Ive had two medical systems give up on me and am now about to see Mayo Clinic next month. Most things have come back normal .
 
2 ER VISITS
CT scan head WO contrast (unremarkable)
CT Abdomen with contrast (Enlarged Liver)
MRI abdomen without contrast (mild iron deposits in bone marrow, I was on once a day Iron tablets for my iron deficiency but thought this was weird)
Ultrasound abdomen (enlarged liver and spleen)
CTA Head neck and chest with contrast (unremarkable)
Over 50 different blood work done
Iron deficiency found
SIBO methane and hydrogen (then Cdiff after treatment)
Colonoscopy 
Upper endoscopy (mild erythema of esophagus, esophagus irritation noted)
PillCam endoscopy 
High LDH
Low FSH
Low LH
Low Testosterone
Low Free testosterone
EBV Antibody positive 
EBV acute negative
CMV negative
HEP A,B,C negative
High blood protein

Any ideas much appreciated!!