text: Press, N. et al. 'That's like chopping off a finger because you're afraid it might get broken': disease and illness in women's views of prophylactic mastectomy. Soc. Sci. Med. 61, 1106-1117
  Article Press, N. et al. 'That's like chopping off a finger because you're afraid it might get broken': disease and illness in women's views of prophylactic mastectomy. Soc. Sci. Med. 61, 1106-1117 Nancy Press Nancy Press Remove suggestion Susan Reynolds Susan Reynolds Remove suggestion Linda Pinsky Linda Pinsky University of Washington Seattle Message author Remove suggestion Vinaya Murthy Vinaya Murthy Remove suggestion Michael C Leo Michael C Leo Kaiser Permanente Message author Remove suggestion Wylie Burke Wylie Burke Remove suggestion University of Pittsburgh, Pittsburgh, Pennsylvania, United States Social Science & Medicine (Impact Factor: 2.89). 10/2005; 61(5):1106-17. DOI: 10.1016/j.socscimed.2005.01.012 Source: PubMed ABSTRACT While data are accumulating on the efficacy of prophylactic mastectomy as a means to reduce breast cancer risk in high risk women, the effectiveness of the procedure depends on women's interest in undergoing the procedure. We report on women's responses to this surgical option as a prevention tool. Data derive from a multi-method study of women's interest in and understandings about genetic testing for breast cancer susceptibility. The sample comprises 246 women of varying ethnicities and familial breast cancer risk from Seattle, USA. In this paper, quantitative data are presented on the sociodemographic and risk perception correlates of degree of interest in taking a genetic test for breast cancer if prophylactic mastectomy were the only treatment option. In addition, we report results of a content analysis of women's open-ended responses to the question of whether and why they could imagine undergoing prophylactic mastectomy. Our analysis of these data benefits from a central distinction in medical anthropology between the concepts of illness and disease. We suggest that while prophylactic mastectomy may prevent the "disease" of breast cancer, it may be of little interest to women who see this surgery as itself mimicking the "illness" of breast cancer. 1 Follower · 14 Reads References Cited In (13) Sorted by: Order of availability Order of availability Appearance in publication Source Available from: Joan L. Bottorff ""Putting risk in its place" did not occur for all women, and was not a static process, indicating that some women are more able to live with the perception of chronic breast cancer risk than others. Press et al [21] argued that RM may have different meanings for women, and they explained the variation in women's uptake of RM in the United States, in terms of the distinction between illness and disease. Women who see RM as mimicking the illness of breast cancer, as opposed to preventing the disease, are less likely to consider the procedure an option. " Article: Time to decide about risk-reducing mastectomy: A case series of BRCA1/2 gene mutation carriers Mary McCullum · Joan L Bottorff · Mary Kelly · Stephanie A Kieffer · Lynda G Balneaves [Show abstract] [Hide abstract] ABSTRACT: The purpose of this research was to explore women's decision-making experiences related to the option of risk-reducing mastectomy (RM), using a case series of three women who are carriers of a BRCA1/2 gene mutation.
  RM decision making may shift over time and require decision support over an extended period. Full-text · Article · Feb 2007 · BMC Women's Health Download Article: Culture, Health and Illness (Introduction to Medical Anthropology) Instructor Teaching Assistant Vinay R. Kamat · Stephen Robbins No preview · Article · Request full-text Article: Ethical obligations and counseling challenges in cancer genetics Wylie Burke · Nancy Press [Show abstract] [Hide abstract] ABSTRACT: Cancer genetics is creating new practice opportunities in medical genetics, oncology, and primary care. The ethical and counseling challenges of this new area of practice are not unique but sometimes take new form in the context of genetic risk. This article uses cases to explore the issues associated with shared family risk, including competing concerns of family members, duty to warn relatives of genetic risk, and testing of children and other relatives. The ethical obligations of clinicians start with the need to maintain competence in the face of rapidly evolving science. Clinicians should be able to identify patients within their practice who are candidates for genetic testing. When genetic susceptibility to cancer is identified, patients should be offered counseling and follow-up, with referral as appropriate, to ensure delivery of care consistent with current standards. When patients experience barriers to needed health care, clinicians should advocate for their needs. Clinicians must ensure the autonomy and informed decision-making of all members of cancer-prone families. Clinicians must also provide emotional support and accurate information about cancer risks and cancer risk reduction measures, including uncertainties. Teamwork among different specialties is important in addressing these challenges. No preview · Article · Mar 2006 · Journal of the National Comprehensive Cancer Network: JNCCN Request full-text Show more Note: This list is based on the publications in our database and might not be exhaustive. Similar Publications Selecting Patients with Ovarian Cancer for Germline BRCA Mutation Testing: Findings from Guidelines and a Systematic Literature Review Diana M. Eccles, Judith Balmaña, Joe Clune, Birgit Ehlken, Annegret Gohlke, Ceri Hirst, Danielle Potter, Claudia Schroeder, Jerzy E. Tyczynski, Encarnacion B. Gomez Garcia Inherited breast cancer predisposition in Asians: multigene panel testing outcomes from Singapore Edward S Y Wong, Sandhya Shekar, Marie Met-Domestici, Claire Chan, Melody Sze, Yoon Sim Yap, Steven G Rozen, Min-Han Tan, Peter Ang, Joanne Ngeow, Ann S G Lee Genetic Testing and Post-Testing Decision Making among BRCA-Positive Mutation Women: A Psychosocial Approach Sharlene Hesse-Biber, Chen An Data provided are for informational purposes only. Although carefully collected, accuracy cannot be guaranteed. The impact factor represents a rough estimation of the journal's impact factor and does not reflect the actual current impact factor. Publisher conditions are provided by RoMEO. Differing provisions from the publisher's actual policy or licence agreement may be applicable. View other sources Hide other sources View other sources Hide other sources © 2008‐2016 researchgate.net. All rights reserved. About us · Contact us · Careers · Developers · News · Privacy · Terms | Advertising · Recruiting Join for free Log in Email Password Forgot password? Keep me logged in or log in with ResearchGate is the professional network for scientists and researchers. Join for free