text: Thanks for that Tanz. We are on the way to having some more therapy sorted out although it has to be through a convoluted route due to lack of resources. I think that there needs to be a UK based support group so that parents can let off steam a bit. As is the case with most little understood conditions, the way we parent cannot be the norm and is therefore open to being misinterpreted even by other family members. It is always useful to be able to talk to people in the same position.
  Hmm, food for thought..
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