Inclusion International, a non-governmental organization advocating on behalf of people with intellectual disabilities, has argued that genetic research can be beneficial but that it can also undermine human rights, especially for people with disabilities.36 Advances in biotechnology, such as stem-cell therapy, reproductive cloning and chromosomal manipulation, are technologies of great potential, but they also raise complex ethical and biomedical issues, which can outpace current legislative and policy frameworks.37 Some analysts have identified a set of principles that they believe ought to guide further work in the fields of genetic research and biomedicine: justice, non-discrimination, diversity, and autonomy with informed decisions.
Les progrès dans le domaine des biotechnologies, notamment la thérapie cellulaire, le clonage reproductif et la manipulation chromosomique, sont porteurs de grandes promesses, mais ces techniques soulèvent aussi des questions éthiques et biomédicales complexes auxquelles les législations et les politiques actuelles ne permettent plus toujours de faire face. Certains analystes ont défini un ensemble de principes qu'ils pensent devoir orienter les travaux futurs dans les domaines de la recherche génétique et de la biomédecine, à savoir la justice, l'absence de discrimination, la diversité et l'autonomie fondée sur la liberté de décision.