Ka taƙaita labarin:  Wannan shi ne lokacin da mahaifin da ke son 'yarsa ya yi rawa da ita a gida. Amma mahaifinta, Glenn O'Neil, mai shekara 42, ne ya shirya wa Eliza mai shekara 5 bikin rawa a gidansu da ke South Carolina domin tana da kwayar cutar AAV9 kuma iyalin suna cikin killacewa da kansu. Yarinyar mai shekaru biyar tana fama da wani yanayi na kwayoyin halitta wanda ba a saba gani ba kuma a ƙarshe ya zama mai mutuwa wanda ake kira Sanfilippo Syndrome kuma dole ne ta guji yin hulɗa da ƙwayoyin cuta na mutane ko kuma zai iya kashe ta. Gungura ƙasa don bidiyo. Dance: Glenn O'Neil, mai shekara 42, yana rawa tare da 'yarsa Eliza, mai shekara 5, wacce ke da Sanfilippo Syndrome kuma dangin sun zaɓi keɓewa da kansu don haɓaka damar samun magani mai ceton rai. Dangantakar iyali: Mama Cara, baba Glenn da ɗan'uwan Beckham, 8, suna zama a gida tare da Eliza awanni 24 a rana da kwana bakwai a mako don kare ta daga ƙwayoyin cuta. Iyalin suna karkashin killacewa da kansu, don kada Eliza ta kamu kuma ta gina rigakafi ga wata kwayar cuta, AAV9. Idan ta gina rigakafi ga wannan kwayar cutar da alama ba za ta cancanci shiga gwajin asibiti ba, kamar yadda AAV9 zai ba da magani a cikin jiki. Wannan ita ce kawai damarta ta rayuwa. Iyalinta sun sanya kansu a karkashin keɓewa na son rai a cikin watanni tara da suka gabata a ƙoƙarin kauce wa hulɗa da wasu mutane. Iyalin sun zabi su guji mu'amala da mutane da duk wani abu da mutane suka taba. Ma'ana mahaifiyar Cara, mahaifinsa Glenn da ɗan'uwansa Beckham, mai shekara 8, su kasance a gida tare da ita awanni 24 a rana da kwana bakwai a mako don kare ta. Mahaifiyarta, Cara ta bar aikinta a matsayin likitan yara yayin da Glenn ke aiki a nesa a matsayin mai ba da shawara a Symantec kuma Beckham ba zai iya halartar makarantarsa ba, a maimakon haka ya yi aikinsa na makaranta daga nesa. Iyali suna samun kayan abincin su kuma a lokuta da ba safai suke hulɗa da mutane ba, suna sanya abin rufe fuska da safar hannu. Suna barin gidansu sau ɗaya kawai a mako don zuwa rairayin bakin teku ko filin da babu kowa, inda yara za su iya yin yawo. Tun lokacin da aka gano Eliza da cutar a watan Yulin 2013, dangin sun tara dala miliyan 2.2 tare da shafin GoFundMe da sauran kokarin tara kudi na gargajiya...
Eliza tana fama da wata cuta ta kwayar halitta da ake kira Sanfilippo Syndrome. Iyalinta sun killace kansu a cikin watanni tara da suka gabata. Iyalin suna samun kayan masarufin su kuma suna zama a ciki 24/7. A lokutan da suka saba hulda da mutane suna sanya abin rufe fuska da safar hannu. Iyalin sun tara dala miliyan 2.2 don gwajin kwayoyi tare da shafin GoFundMe.