Ka taƙaita labarin:  Ƙaramar Amie Rose tana da wata cuta ta jini da ba a yawan samu - kuma a sakamakon haka, an riga an yi mata ƙarin jini sau 60 sa'ad da take 'yar shekara biyar. Yarinyar tana da cutar Anemia ta Diamond Blackfan kuma don magance yanayin, dole ne ta je asibiti kowane mako huɗu don ƙarin jini. Cutar, wanda ke nufin jikinta ba zai iya samar da jajayen ƙwayoyin jini ba, abu ne da ba a saba gani ba wanda ya shafi mutane 125 ne kawai a kasar. Amie Rose (wanda aka zana a dama yana karɓar ɗayan jinin jini na yau da kullun a watan Satumba na 2013) yana da cutar Diamond Blackfan Anemia, wanda ke nufin jikinta ba zai iya samar da jajayen ƙwayoyin jini ba. Sa'ad da aka haife ta, Amie tana da ɗan ciwon zuciya, amma likitoci sun gaya wa mahaifiyarta Jo, daga Horley, Surrey, cewa ya kamata ya tafi cikin makonni shida. Mrs. Rose, 'yar shekara 44, ta ce: 'Lokacin da na dawo da Amie don duba ta sun ce ta yi farin ciki kuma sun yanke shawarar kai ta don gwajin jini. 'Sakamakon ya dawo kuma likitocin sun ce dole ne a yi mata jinin gaggawa saboda babu isassun ja sel a jikinta. 'Sai aka kai mu asibitin Great Ormond's Street don a yi gwajin ƙwayar ƙashi kuma aka gaya mana cewa Amie za ta riƙa karɓan jini a kai a kai.' Amie (a hoto tare da uwar Jo da uba Gordon) dole ne ta je asibiti kowane mako huɗu don ƙarin jini. An yi wa Amie (a hoton tana da mako bakwai) ƙarin jini na gaggawa bayan likitoci sun tsai da shawara su gwada jininta a lokacin jinya domin ta yi fari. Daga nan sai ta yi gwajin ƙwayar kashin ƙashi. Amma 'yan kwanaki bayan an aika da ita gida, Amie ta daina numfashi kuma iyayenta suka mayar da ita asibiti. Likitoci sun sami damar daidaita matakan baƙin ƙarfe na Amie amma dole ne ta yi aikin gaggawa don shigar da tashar da ke gudana daga jijiyar jugular zuwa zuciyarta. 'Amie ta daina numfashi kuma dole ne mu gaggauta mayar da ita asibiti inda suka yi mata yunwa kuma suka sake sanya ta a kan madarar madara,' mahaifiyarta ta kara da cewa. 'Mun ji tsoron abin da zai iya faruwa da ita amma kawai muna son Amie ta tsira.' Kowane mako Amie dole ne ta sami nas don haɗa bututu tare da famfo a kasa zuwa...
Tana da cutar anemia ta Diamond Blackfan saboda haka jikinta ba zai iya samar da jajayen kwayar jini ba. Wannan cuta ba ta da yawa ta shafi mutane 125 ne kawai a kasar. Amie dole ne ta je asibiti kowane mako huɗu don ƙarin jini. Kwana shida a cikin mako, Amie tana haɗe da bututu wanda ke cire baƙin ƙarfe daga jininta.