Pfupisa nyaya yacho:  Mwana Malakai ave ari mupenyu kwemwedzi minomwe uye haana kumbobvira abva muchipatara. Mwana achangoberekwa haagoni kuona, haagoni kunzwa uye anotambura kufema. Vanachiremba vanoti angasakwanisa kufamba. Vachinzi vane chirwere chisingawanzowaniki chinonzi Pallister Killian Syndrome (PKS), amai vake vaifanira kurega basa ravo muPerth kuitira kuti vagone kutarisira mwanakomana wavo nguva yakazara. Pasina mari, Stacy Maitai akamanikidzwa kurarama nemari yebetsero yemadhora 90 pavhiki kuti atsigire mwana wake nomwanasikana wake ane makore manomwe okukura. Uye musikana ane makore 28 okukura haakodzeri kuwana rumwe rubatsiro rwemari kubva kuCentrelink sezvo asiri mugari weAustralia. Dzorera pasi kuti uone vhidhiyo. Mwana Malakai (ari pamufananidzo) ave ari mupenyu kwemwedzi minomwe uye haana kumbobvira abva pamadziro echipatara. Amai Stacy Maitai vaifanira kusiya basa ravo kuPerth kuti vanyatsotarisira mwanakomana wavo. Mwana achangoberekwa haagoni kuona, haagoni kunzwa uye anotambura kufema. Vanachiremba vanoti angasakwanisa kufamba. Maererano nePallister Killian Syndrome Foundation yeAustralia, vanhu vanenge 15 kusvika ku20 vane PKS vanozivikanwa kuti vari muAustralia. PKS chirwere chisingawanzoitiki chinotapukira vanhu vanenge 200 munyika yose uye 15 vacho vanozivikanwa kuti vari muAustralia, maererano nePallister Killian Syndrome Foundation of Australia. Kazhinji kacho hachiratidzwi panguva yokuzvitakura uye chinowanikwa pakuzvarwa kana kuti nokukurumidza pashure nemhaka yechimiro chayo kana kuti zvimwe zvinetso zvakadai sokunonoka kukura, kuzvimba uye kukanganisa mwoyo kwokuberekwa nako. Mai Maitai vakataura nezvenguva inorwadza yavakaziva nezvomugariro womwanakomana wavo. 'Ndaida kuzviuraya nemhaka yokuti ndaifunga kuti yakanga iri mhaka yangu yose,' akaudza Daily Mail Australia. 'Asi ipapo ndakazviwana ndimene ndichifanira kusarudza kana kutiza ikoku kwose ndokurega mwanakomana wangu kana kuti kuva akasimba nokuda kwavana vangu kupfurikidza nokufambira mberi ndokugara navo nhanho imwe neimwe yenzira. 'Rwave rwuri rwendo rwakaoma kusvikira zvino asiwo chikomborero nokuti ndawana tariro muna Malakai uye ndinoziva kuti achapfuura.' Kazhinji kacho chirwere chacho hachizivikanwi panguva yokuzvitakura uye...
Mwana muduku Malakai ane chirwere chisingawanzowaniki chinonzi Pallister Killian Syndrome. Malakai haagoni kuona, haagoni kunzwa, anotambura kufema uye angasakwanisa kufamba. Stacy Maitai akasiya zvose kuti atarisire mwanakomana wake ane mwedzi minomwe. Amai vane vana vaviri vakamanikidzwa kurarama nemadhora 90 pavhiki kubva kuCentrelink. Haagoni kugamuchira rumwe rubatsiro rwemari sezvo asiri mugari weAustralia. Amai vasina murume vakatamira kuPerth vachibva kuNew Zealand makore mana adarika. Peji yokuunganidza mari yakatangwa kuti ibatsire mhuri iyi iri kutambura.