Pfupisa nyaya yacho:  Vamwe amai vane mwanakomana ane chirwere chisingawanzowaniki, chinoita kuti ganda rake riite serinenge rakatsva, vakakatyamadzwa pashure pokunge mumwe munhu wavasingazivi avaudza mapurisa nezvokushungurudzwa kwaakaitwa achiri muduku. RJ Jackson ane makore mana okukura ndomumwe wavanhu 70 bedzi munyika vanotambura nechirwere cheNetherton. Ganda rake rinoratidzika kuva rakatsvuka uye rakazvimba, uye kazhinji kazhinji rakafukidzwa neganda rakaoma rinooneka semasikirwo pamuviri wake. Amai vake Valerie Jackson vanofanira kugara vachimufukidza nemakemikari kuti ganda rake rirege kuoma. Asi achangobva kuenda kunotenga, Mai Jackson vakangoerekana vakomberedzwa nemapurisa aiva nezvombo, avo vakanga vadanwa nomumwe munhu. Valerie Jackson, anoratidzwa kuruboshwe nomwanakomana wake RJ paakanga ava nemwedzi mitatu, akapomerwa mhosva yokupisa mwanakomana wake pashure pokunge mumwe munhu ari pachena afunga kuti chirwere chake cheganda chisingawanzowaniki chaiva zviratidzo zvokubatwa zvisina kufanira. RJ, achangobva kuratidzwa kurudyi, ane chirwere chinonzi Netherton's syndrome, chirwere chisingawanzoitiki chinoita kuti ganda rake riite seritsvuku uye riite zvitsvuku. RJ achangoberekwa, Mai Jackson, vokuLas Vegas, vakaziva kuti paiva nechimwe chinhu chakanga chisina kururama nomwanakomana wavo, pashure pokucherechedza ruvara rutsvuku rwaipararira pachipfuva chake chiduku. Vakataura kuti vainetseka kuti Mai Jackson vakanga vari kushungurudza RJ. 'Kunongoratidza bedzi ukuru hwokusaziva kwavanhu,' vakadaro Mai Jackson, vanobva kuLas Vegas. Amai ava vane makore 35 okukura vakati vanoshorwawo mumugwagwa, vamwe amai vachivapomera mhosva yokupisa RJ. 'Ganda rake rakatsvuka uye rinopenya,' Mai Jackson vakawedzera kudaro. 'Ndinomuisa Vaseline pose pose kaviri kana katatu pazuva kuti ganda rake rirambe rakapfava asi achiri kurwadziwa. 'Paaiva muduku aifanira kuva nawo mumuviri wake maawa mashomanene ari ose - kunyange usiku. 'Hatina kurara kwamakore anenge mashanu.' Amai vevana vana vakati mwanakomana wavo muduku ari kunangidzirwawo navanodheerera - kuseka kune utsinye kwakawanda kuri kuitwa navakuru. 'Mumwe mukadzi akauya kwandiri ndokufunga kuti akanga apiswa zvakaipisisa,' akadaro. 'Akandiudza zvakasimba kuti, "Ndiregererei, mwana wenyu abatwa nezuva". 'Handina kuzvitenda. Asi takanga tajaira kutarisisa uye kutaura kwokusaziva. 'Ndinofunga kuti ndiye mukomana akanaka zvikurusa munyika. 'Iye ane kunyemwerera kwokusada kuonga uye...
R.J. Jackson ndomumwe wevanenge 70 vanotambura neNetherton's syndrome. Ganda romwana ane makore mana okuberekwa rinoratidzika kuva rakatsvuka uye rine mahwanda, uye rinogona kuva rinobaya uye rinorwadza. Amai Valerie Jackson vanopomerwa nguva dzose kuti'vakamupisa kana kuti kumutsva '. Anoti R.J. anotukwa noutsinye nevanodheerera - vakawanda vacho vari vanhu vakuru vasingazivi.