Whakarāpopototia te tuhinga:  Otiia kaore i roa ka mate a Mathilda i te mate huka, e mate ana i nga whakamataku o te po me te mamae nui. I te whakaae a Claire Crisp kia werohia tana tamahine e toru tau te pakeke, a Mathilda, ki te rewharewha poaka, i whakapono ia kei te mahi ia i te mea pai ki te tiaki i a ia mai i te mate uruta e whakawehi ana i te ora. I te tau 2009, i karangatia ngā tamariki katoa kei raro iho i te rima tau ki te werohanga i roto i tētahi kaupapa ā-motu. He waimarie, ko te pakarutanga nui o te 2009-2010 kaore i tae ki te rahi o te mate uruta e tumanakohia ana. Engari e whakapono ana a Claire, nā te kano ārai mate i mate ai a Mathilda i te mate huka. Ko Mathilda te tangata taitamariki rawa o te ao e mōhiotia ana e mate ana i te mate ā-roto, e meinga ai te hunga e mate ana kia moe ohorere i te awatea. I raru hoki a Mathilda i ngā whakamataku i te pō, i ngā mamae nui. I tēnei wā, he wāhanga ia o tētahi pakanga ā-ture roa ki te Kāwanatanga mō te utu mō te mate huka e pā ana ki te werohanga. I te wiki kua hipa, i tae atu to rātau take ki te kōti i runga i te amuamu. Kua haere tonu tēnei tautohetohe ahakoa i whakaae ngā kaipūtaiao o te Kāwanatanga i ngā tau e rua ki mua, ka taea e te kano ārai mate, ko Pandemrix, te pā mai ki te mate hē, i te mea i whakakahoretia i mua atu he pānga. I roto i tētahi rangahau tatauranga, i tāngia ki te British Medical Journal, i kitea e rātau ko ngā tamariki i whiwhi i te kano ārai mate, e 14 ngā wā ka nui ake te tūponotanga ki te whakawhanake i te narcolepsy i ngā tamariki kāore i werohia. I whakaaro a Claire, 44 tau, he kaiwhakaako tinana o mua o te NHS, kei te haumaru ia i a ia e werohia ana a Mathilda. I kī ngā tākuta tērā pea ka raru te manawa o tana tamahine mai i te rewharewha poaka nā te mea i whānau mai ia ki tētahi mate iti o te korokoro, te laryngomalacia, e ārai ana i te manawa. I te nuinga o te wā ka kore e taea e ngā tamariki i te toru o ō rātau tau. "I tino aro nui mātou ki te mōrearea o te rewharewha poaka i te mea kāore anō a Mathilda kia tipu ake i te larynngomalacia", e ai ki a Claire, he tama anō tōna, a Elliot, me tētahi atu tamahine, a Liberty. Neke atu i te 900,000 ngā horopeta o Pandemrix i whakahaeretia e ngā hōhipera NHS i te tau 2009 me te 2010. Ko nga tohu raruraru tuatahi a Mathilda i puta i roto i nga wiki e rua. Ko tōna moe i noho...
Ko Mathilda te tangata taitamariki rawa o te ao e mōhiotia ana e mate ana ki te mate huka. I whakapono tōna whaea a Claire kei te tiaki ia i a ia i te wa i werohia ai a Mathilda ki te rewharewha poaka. I timata a Mathilda ki te whiwhi Xyrem, he tarukino e awhina ana i nga tohu o te narcolepsy.