Whakarāpopototia te tuhinga:  Mai i te whanautanga wawe o tā rāua tama, a Aiden, he mate onge e pōhēhē ana ki ngā tākuta, kua whakapau kaha a Karl Smith rāua ko Vikki Jackowiak ki te āwhina i a ia. I whānau mai a Aiden, e whā nei ona tau, he tipu i tōna mata, i tōna tuara, i tōna waewae, ā, kua whara tōna roro, nā reira kāore e taea e ia te haere, te kōrero rānei. I whakamātauria ia i muri i te whakamātautau kia kitea ai he aha te take o ana raruraru, ā, nā reira, i kitea tata nei he mate o Clove Syndrome. Panuku ki raro mō te ataata. I puta a Karl Smith raua ko Vikki Jackowiak i tenei ata me ta raua tama, a Aiden, he mate a Clove Syndrome. I kitea te mate i te tau 2011 anake, ā, 150 noa iho ngā tāngata i tāutuhia ki a ia i tēnei wā. Ko te whaea o Aiden, ko Vikki, 40, no Alnwick, Northumberland, i kii ko te taatai he manaakitanga me te kanga - na te mea kua ngaro i a ia nga tumanakohanga kia kitea he rongoa mo tana tama i tetahi ra. 'I te wā i whiwhi ai mātou i te tātaritanga, ka rapu mātou i te ipurangi, ā, ka kite kāore he rongoā, he mea whakamā. I tūmanako tonu ahau ka ārahi te tātaritanga ki te rongoā, ki tētahi mahi e taea ana e ia,' i mea ia i runga i This Morning o tēnei rā. Ko ngā kupu Clove e tohu ana i te Congenital, Lipomatous, Overgrowth, Vascular Malformations, Epidermal Nevi and Spinal/Skeletal Anomalies and/or Scoliosis. Ko te mate o Aiden e puta ai te ngoikoretanga o te mata nā te nui o te ngako. Ko nga tohu ko te kiri, te waewae, te tinana me te ngoikoretanga o te tuara, penei i te ahua o te ngako momona, te scoliosis ranei (te ngoikoretanga o te tuara). Ka taea hoki te kitea he ngoikoretanga o te roro (roro toto) pēnei i te tohu whanau. I whakamārama te pāpā o Aiden he pēhea te pānga o te mate ki ngā tāngata i ngā wā katoa, ā, ko Aiden tētahi take tino kino. Ka mea ia: 'Kāore he tamariki e rua e ōrite ana ki a Cloves. Ko ia te mutunga teitei o te whānuitanga, e kore e taea e ia te haere, te kōrero, pērā ki ētahi atu e taea ana e ia.' I whakaae nga matua kua whai whakamarie te kitenga i a rātau i te mea kua taea e rātau te whakatau i ētahi atu whānau e pā ana ki taua mea ano e pā ana ki a rātau. He tino pai te whanaungatanga o te tamaiti iti ki tana tuakana, ki a Raniera, e whakaahuatia ana i te taha matau. He maha ngā tākuta i tirohia e Vikki rāua ko Karl i mua i te kitenga o Aiden. Ka mea a Karl, 35 ona tau:...
Ko Aiden, i whanau wawe me te mate onge i ohorere ai nga taote. I tēnei wā, e whā, kua tāutuhia e ia he Clove Syndrome. E 150 noa iho ngā tāngata i tāutuhia ki a ia i tēnei wā mai i tōna kitenga i te tau 2011. I kii a Mother Vikki e hari ana ratou i te mōhio ki te āhua o Aiden. Engari i pouri ki te ako kāore he rongoā.