Whakarāpopototia te tuhinga:  He tamaiti 13 tau te pakeke, e herea ana e te mate ngaro ki te tūru wira me te ngongo kai, kua ora mai i muri i nga tau o te mamae whakawhetai ki tana whaea whakatau i rapu i te ipurangi mo nga whakautu mo te aha i mamae ai ia. E ai ki te whakaaturanga o tenei ra, ko Bobby Leithauser, no Marco Island, Florida, i kitea i te tuatahi he dysautonomia, he ngoikoretanga i roto i te punaha nervous autonomous, me te Ehlers-Danlos Syndrome, he mate whatu - engari kaore nga tikanga i whakaarohia mo ana mate katoa, tae atu ki nga mate o te kopu, te ngaro o te tirohanga me te mamae o te kaki. I te kore e whakaae ki te tātaritanga tuatahi a tana tama, ka tīmata te whaea o Bobby, a Keri Leithauser, ki te rangahau i ōna tohu i runga ipurangi, ā, ka tae atu ki te mahi a Tākuta Harold Rekate, he taote roro i te Cohen Children's Medical Center i New York, nāna i kitea he ngoikoretanga Chiari tō tana tama, he āhuatanga e taea ana te whakaora, engari he āhua onge e pā ana ki te roro iti, te wāhanga o te roro e whakahaere ana i te taurite. Panuku ki raro mō te ataata. He kitenga whakamiharo: Ko Bobby Leithauser, 13, i mate i tētahi mate whakamataku mamae mō ngā tau i mua i te whakatuturutanga ki a ia he kino o Chiari, he mate onge e pā ana ki te wāhanga o te roro e whakahaere ana i te pauna. Te hiahia ki te rongoa: Ko nga maatua o Bobby, ko Keri raua ko Tom Keri Leithauser, i whakamarama ko ta raua tama i tiimata te mamae o te kopu i te wa e iwa noa ana ona tau, me te hiahia kia whai ngongo kai ia ia. I te marama o Tihema o te tau kua hipa, ka whakahaeretia e Tākuta Rekate a Bobby, mā te whakatinana i tētahi pokanga i waihangatia e ia, hei whakatika i te āhuatanga e pēhi ana i tōna tuara ki tōna roro. E toru marama i muri mai, ka mahara a Bobby ki nga ra i muri i tana pokanga, e mea ana 'kaore ia i whakapono' kua mutu tana mamae kore i muri i nga tau o te mamae. Ko te āhua nei i puta mai ngā raruraru hauora o te taiohi i te mea e iwa noa iho ona tau, i te wā i tīmata ai te tamaiti kaha ki te mamae i te puku, i akiaki ai ōna mātua ki te tīmata ki te whakaiti i tana kai ki te wāhi e kai ana ia i te blueberries me te heihei anake. Engari ahakoa o rātau kaha katoa,
Ko Bobby Leithauser, no Marco Island, Florida, i timata te wheako i te mamae o te kopu i a ia e iwa noa iho ona tau. I a ia e kino haere ana tana ahuatanga ngaro, ka whakanohoia ia ki roto i te tuuru wira, ka hoatu ki a ia he ngongo kai ka tiimata te ngaro o te tirohanga hei taapiri ki ona mamae. Na te rangahau a Keri, tōna whaea, i ārahi te whānau ki a Tākuta Harold Rekate, he taote roro i Niu Ioka, nāna i whakatau he mate roro onge te taiohi. E toru marama i muri i te pokanga, kei te tino ora ake a Bobby.