Whakarāpopototia te tuhinga:  E whakaatu ana nga whakaahua i a Kerrie Cartmill e titiro ana ki raro ki tana tama iti, i whanau hou, e kopikopiko ana ki tona uma. Ahakoa he iti ake i te putea huka, a, e karapotihia ana e nga ngongo me nga waea, kei te moe marie ia. Engari ahakoa he atawhai te pikitia, he wā whakamataku te pikitia mō Mrs Cartmill rāua ko tana tāne ko Stuart. I tere haere te kino o te hauora o tā rāua tama, ā, i mōhio rāua ko ēnei rā whakahirahira pea ko te wā anake e noho tahi ai rāua ko tā rāua tama. Kei te kitea a Kerrie raua ko Stuart Cartmill (maui me te matau) e mau ana i ta raua tama hou a Matthew ki o raua uma. I whānau mai ia ki tētahi āhuatanga onge e kite ana i te 90 ōrau o ngā pēpi e mate ana i roto i ngā rā tuatahi e rima o ō rātou oranga. I whānau mai a Matthew ki te Trisomy 13, he mate ā-kōromotu onge e puta ai ngā rerekētanga maha o te whanautanga e puta ai te ngoikoretanga ā-tinana, ā-hinengaro hoki. Ko Matthew, no Newry, Ireland ki te Raki, e mate ana i tētahi mate onge e kiia nei ko Trisomy 13, e 90 ōrau o ngā pēpi e mate ana i roto i ngā rā tuatahi e rima o to rātau oranga. He mea whakamiharo, i kaha ake a Matthew i nga mea katoa, a kua ora ia ki te kite i tana huritau tuatahi, he tohu nui i wehi ai nga taote kaore pea ia e tae atu. Ko te trisomy 13 he mate chromosomal ka taea te arahi ki te maha o nga ngoikoretanga whanau ka puta he ngoikoretanga tinana me te hinengaro. Kotahi noa iho i roto i te 16,000 nga whanautanga e pā ana ki taua mate, ā, he mea tino onge, ko Matthew anake te tangata kei Ireland ki te Raki e pā ana ki taua mate. I te tau tuatahi o tona oranga, 170 nga ra i noho ai ia ki te hōhipera, ā, i haere ia ki te tākuta i ia rā. Kua whakapau kaha tōna whānau ki te tiaki i tā rātau tamaiti kotahi, ā, ka whakarerea e Mrs Cartmill, 29, tana mahi hei kaiako kura tuatahi hei tiaki i tana tama. Ka mea ia: 'He tau tino uaua tātau katoa, ā, tata ki te haurua o te oranga o Matthew i noho ki te hōhipera. Engari, kei te rapu mātou kia nui ake te pūmautanga me te noho auau ki a ia i te kāinga. Ko te trisomy 13, ko te Patau syndrome rānei, he rerekētanga chromosomal i takea e tētahi tārua anō o te chromosome 13 i roto i ia pūtau. He maha ngā rerekētanga o te whanautanga e...
I whānau mai a Matthew Cartmill ki te Trisomy 13, he mate chromosomal. Ko te mate e pā ana ki te nui ake o te chromosome 13 i roto i ia pūtau. Ka pā ki ngā hapa ā-whanau e ārahi ana ki te ngoikoretanga ā-tinana, ā-hinengaro hoki. Ko te 5 ki te 10 ōrau anake o ngā pēpi kei roto i te mate e ora ana ki te tau kotahi. I whakanui i tōna rā whānau tuatahi - i wehi ngā tākuta e kore ia e eke. He āhua onge rawa te āhua o te mate, kāore e taea e ngā tākuta te kī he aha te matapae mō te heke mai.