Brandon and Britney Buell were told
their son Jaxon wouldn't make it full-
term, then he wouldn't survive a few days,
then a few weeks -  but now Jaxon is
two and a half years old. Meet the little
boy who is defying all the odds, all
because his family decided to say yes to
life. "You're just in a snuggling kind of
mood this morning."
Like many young married couples Brandon
and Brittany Buell were excited to
learn in late 2013 they were expecting a
baby. It was a bundle of joy soon
strained by troubling news. The Buell's
17 week ultrasound indicated their
growing baby boy likely had spina bifida.
"They painted a very negative picture.
They transferred us to a high-risk clinic
in Orlando Florida and we went through
ultrasound the ultrasound week after
week twice a week it don't like for some
sort of ultrasound some sort of testing
some sort of counseling even our genetic
counselor who was supposed to be neutral
steered us more towards an abortion or
termination as they called it and even
we denied it, they scheduled it anyways
just in case we changed our minds." But
Brandon and Brittany didn't change their
minds and on August 27, 2014,
Jaxon was born missing roughly
eighty percent of his brain. " I remember
laying there when I was getting my
c-section and he tried to prepare me for
just even how small his head was and
even that first initial shock was like
okay we're really in for something
because he was a lot smaller than I ever
anticipated." Jaxon as far as doctors
can tell if not in pain but is severely
disable. He receives his nutrition from
a tube and has frequent startle
seizures.
 
Misdiagnosis after
misdiagnosis, the Buell's finally learned
their son's condition when he turned one.
Jackson had microhydranencephaly, which
means there's spinal fluid where his
brains left and right hemispheres should
be. Brandon and Brittany made a decision
early on in their parenting. Instead of
preparing for Jaxon's death. they would
focus on Jackson's life. "We want him to
experience as much as possible and it's
really benefited him because he's really
smart and strong and he's learning." They
document his strides on Facebook videos
" mommy you look at you eating that
cookie."  Jaxon eating on his own. "good ha
ha ha ha look at those big step." Jaxon
attempting to walk. The Buell's even
claim to hear their son say I love you
like in this moment captured here.  Jaxon
recently passed the two and a half year
mark -  another achievement defying what
the family doctors predicted. "There's a
great chance he will not survive and
then if he does survive he'll probably
never hear I've never see if I never
walked I never taught tying it really
hungry basically not be able to do
anything effectively we still walk
forward in our own faith, thinking it's not
our choice." The Buell's want to help
other families also living with a
medical marvel so they created the
Jaxon Strong Foundation to help raise
awareness and funds for neurological
research and the Christian couple
released a book chronicling lessons
they've learned. It's titled 'Don't Blink'.
"This life is short happiness is fleeting
nothing lasts forever and it's enjoying
the moment it's seizing the day it's
carpe diem." "You mentioned that Jaxon
was here born for a purpose, what do you
think that purpose is?" "I think it comes down
to hope. He's already touched so many
more lives than I will ever
touch and he's not even three. We know
better than anybody else there's a great
chance we outlive our son and although
that'll be tough if and when that day
happens it does not discount anything
he's done it does not take away any
value he has. Value is not in how many
days you're here but it's truly to show
that every single one of us has a unique
story and what we can contribute to
society. Love you Jaxon."  What a big
impact one little boy can have on the
world."
