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this is data from community counts (cdc and us hemophilia treatment center collaboration). shows mediate age of death has increased over time (rise from 39 (!) in 2000 and 59 in 2021). literally saving lives! #ash22 2/n 
Peds hem/onc enthusiast with interest in med ed (and now a PD @ UCSF), QI & safety, hemostasis/thrombosis. Former Saipan pediatrician. Tweets are my own