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super important study that parent proxy pro instruments reliably predict overall qol but not cognitive function in children with #sicklecell disease. implications for future pro studies. #ash22 #hemetwitter 
#lymsm & #mmsm hematologist & patient-reported outcomes researcher @CUHematology. Founder of https://t.co/kN6qeGXfg5, @inTrainingDoc & @inHouseMag. ??????